Mom has started acupuncture. Crazy, huh? With the medication she's on, and the good amount of fluids she takes in - her feet are crazy big! For reals! The new shoes we bought last month already don't fit, she's been wearing Pete's boots for the past few days. We have a new pair coming Wed, hopefully they will be ok. My point - My best friend has been doing acupuncture for awhile on her knee due to a torn ACL - so she suggested Mom might wanna try it out.
I took Bonnie to her first appointment last week. The lady is very nice. She was a former Wedgwood parent also! She explained that Mom's fluid system is not flowing quite right, so she puts a needle in each ankle, her wrists and 4 on her lower back. Then she puts a heating lamp on her back :) and leaves so you can relax. Mom slept a bit the first day. She went back the next day for another and has two more scheduled for this week. Hopefully she will see a change, but if not she gets a warm, quiet hour which is probably a welcome break.
But in bigger news...I think it was Friday night, Dad noticed her catheter wasn't working. It was pretty late in the evening, and so they decided to wait until the next morning to go visit the urgent care center. So, after a unpleasant evening of a very full bladder and a 2+ hour wait, drainage is all better. I guess there was a clog in the tube - so good thing they noticed. Glad these type of adventures are becoming fewer and more far in-between!!
Thanksgiving should be a bit of a challenge. We are having it at Mom and Dad's - which is good - but then they have to be responsible for cleaning and set-up. We are all chipping in for food, which will hopefully make a difference, and I am going to be there Friday morning to help decorate and get set up! Good Family Times!
Monday, November 23, 2009
Monday, November 16, 2009
An exciting weekend!
Just a quick post! The weekend was jam packed with visitors, card parties, hair cuts - you name it! Sunday night even made for an impromptu family dinner for our immediate 6 members.
Bonnie's hair shedding got to a level of incredibly annoying; she was finding hair in her food and even wound around her toothbrush bristles. She decided that was enough, and had a friend come over on Sunday for a more drastic cut. Bonnie got her head shaved! It's not bald, just really - really short! Mom's friend, Jimmy, was visiting also - so he got a buzz cut in support as did Pete! Misha and I just couldn't do it! :)
So, here are some before and after pictures! (Bonnie is a good sport!)
**Actually, Jimmy's wife Cheryl, took a few real shots, which I will get posted in a few days! **
Wednesday, November 11, 2009
Sorry for the wait ...
Bonnie has officially 'graduated' from in-home therapy. Both her regular nurse and physical therapy nurse have decided Bonnie has progressed so much, she no longer needs them to visit. She always has the option of getting new appointments if something changes, though. Her crazy schedule of doctor visits, in-home appointments, radiation, etc... has mellowed out quite a bit. But, this does leave Mom with a bit of extra time, and not much to do.
She is halfway through radiation and chemo pills. The doctors said hair loss and burns usually start at week 3 (which is now) and there is a bit of shedding going on at home. The radiation lasers are aimed around the temples on each side. This is where the hair loss is mainly happening. It started this weekend with a few hairs but during her shower on Monday, there was small handfuls. She doesn't really care much, just doesn't appreciate hair falling into her dinner. As of last night, her new hair growth (over the brain surgery flap) has started coming out too. That's a bit of a bummer, only because she was almost out of her mullet phase... Burns haven't started yet, but she's expecting them soon.
Thanks to a handful of friends who enjoy daytrips to Group Health, the radiation staff has been impressed by the new people taking Bonnie to her appointments. Mom is growing quite fond of the staff; she's even making them presents for the holidays.
I can't say this enough: thanks for the food deliveries. The quality of the meals has greatly exceeded our expectations. Bonnie enjoys the visits as well - she quite likes social hour. With not much to do at home (the DVD player is getting a workout) Mom enjoys the visits and the stories that come from them. We are all lucky to have such a wonderful support system!
She is halfway through radiation and chemo pills. The doctors said hair loss and burns usually start at week 3 (which is now) and there is a bit of shedding going on at home. The radiation lasers are aimed around the temples on each side. This is where the hair loss is mainly happening. It started this weekend with a few hairs but during her shower on Monday, there was small handfuls. She doesn't really care much, just doesn't appreciate hair falling into her dinner. As of last night, her new hair growth (over the brain surgery flap) has started coming out too. That's a bit of a bummer, only because she was almost out of her mullet phase... Burns haven't started yet, but she's expecting them soon.
Thanks to a handful of friends who enjoy daytrips to Group Health, the radiation staff has been impressed by the new people taking Bonnie to her appointments. Mom is growing quite fond of the staff; she's even making them presents for the holidays.
I can't say this enough: thanks for the food deliveries. The quality of the meals has greatly exceeded our expectations. Bonnie enjoys the visits as well - she quite likes social hour. With not much to do at home (the DVD player is getting a workout) Mom enjoys the visits and the stories that come from them. We are all lucky to have such a wonderful support system!
Tuesday, November 3, 2009
Halloween Weekend
Medically - there is nothing new with Mom... just the same day in/day out routine. But a few personal changes and updates.
Bonnie had been wearing Halloween socks pretty frequently to radiation last week and the nurses all thought it was a hoot. They had all talked about coming in costume on Friday, so Mom brought the cutest Spider Hat to wear. One of the Wedgwood teachers brought it for Bonnie; it was a class project. It's a round of construction paper which sits on the head, with a giant circle on the front for the spider face and 8 crinkled long pieces of black paper for the legs. It is adorable, and the nurses loved it!
On Halloween night, Mom and Dad got about 35 kids - which is pretty consistent for that neighborhood. A few Wedgwood families came a-knocking - and one group stayed and chatted with Mom for a bit. She really liked that. Later in the evening, Sasha stopped by with a pair of dogs he was supervising for the evening. Two Yorkshire terriers - who were quite the bundles of energy - made a visit and met Emma, Mom and Dad. They were so cute, but never calmed down - bouncing everywhere, but they gave kisses and snuggles and didn't bother Emma much - so it turned out OK. Just a bit crazy for awhile.
On Sunday, some friends joined Pete and Bonnie for lunch at Misha's new place. Everyone was excited to meet Misha's parents and had only nice things to say about him. They all enjoyed the food, even the fried pickles! Yum! The place was crowded and noisy - but it is a sports bar!
Diane K., (Misha's godmother) volunteered to take Mom to radiation yesterday. I haven't heard how that went, but when I took her it was a piece of cake. I will get the full scoop tomorrow. I think Joyce (Mom's coworker of 17 years!) is taking her Thursday - so that should be nice to break up Mom - and Dad's - routines a bit!
Bonnie had been wearing Halloween socks pretty frequently to radiation last week and the nurses all thought it was a hoot. They had all talked about coming in costume on Friday, so Mom brought the cutest Spider Hat to wear. One of the Wedgwood teachers brought it for Bonnie; it was a class project. It's a round of construction paper which sits on the head, with a giant circle on the front for the spider face and 8 crinkled long pieces of black paper for the legs. It is adorable, and the nurses loved it!
On Halloween night, Mom and Dad got about 35 kids - which is pretty consistent for that neighborhood. A few Wedgwood families came a-knocking - and one group stayed and chatted with Mom for a bit. She really liked that. Later in the evening, Sasha stopped by with a pair of dogs he was supervising for the evening. Two Yorkshire terriers - who were quite the bundles of energy - made a visit and met Emma, Mom and Dad. They were so cute, but never calmed down - bouncing everywhere, but they gave kisses and snuggles and didn't bother Emma much - so it turned out OK. Just a bit crazy for awhile.
On Sunday, some friends joined Pete and Bonnie for lunch at Misha's new place. Everyone was excited to meet Misha's parents and had only nice things to say about him. They all enjoyed the food, even the fried pickles! Yum! The place was crowded and noisy - but it is a sports bar!
Diane K., (Misha's godmother) volunteered to take Mom to radiation yesterday. I haven't heard how that went, but when I took her it was a piece of cake. I will get the full scoop tomorrow. I think Joyce (Mom's coworker of 17 years!) is taking her Thursday - so that should be nice to break up Mom - and Dad's - routines a bit!
Friday, October 30, 2009
A Trip to Radiation
Wednesday, I got to take Mom to radiation therapy. Bonnie had previously asked the nurses if I could take pictures - which they were fine with, so that was the plan. I followed Mom and a nurse to the room. She laid down on a hospital bed which moves up and down. They placed the mask - a hard, blue plastic thing which covers the entire front of her head - on her and used that to lock her to the bed. This way she can't move, talk or even blink. They raise her up and line up a small X on her temples with laser beams used for placement accuracy. They are just like the laser levels people use to line up picture frames or the like. This set-up process takes just a few minutes. Bonnie also has to hold a small ring shaped pillow to help keep her still.
After she was all set up, the nurses moved the the adjoining room and I went back to the waiting room. Mom is by herself in the radiation room for about 15 minutes while the shoot her brain with laser beams! She actually doesn't mind the process much, even though the machine is fairly loud, she likes the solitude and finds it relaxing. Her only complaint is the mask is very tight; it leaves the weave pattern of the plastic on her face. And some of her medicine is making parts of her swell, so the nurses warned her it may get tighter!
Overall, the trip is relatively quick and simple. Mom has the entire trip down, so if anyone would like the option of taking a trip to radiology, it's not a terrible way to spend the afternoon. :)
After she was all set up, the nurses moved the the adjoining room and I went back to the waiting room. Mom is by herself in the radiation room for about 15 minutes while the shoot her brain with laser beams! She actually doesn't mind the process much, even though the machine is fairly loud, she likes the solitude and finds it relaxing. Her only complaint is the mask is very tight; it leaves the weave pattern of the plastic on her face. And some of her medicine is making parts of her swell, so the nurses warned her it may get tighter!
Overall, the trip is relatively quick and simple. Mom has the entire trip down, so if anyone would like the option of taking a trip to radiology, it's not a terrible way to spend the afternoon. :)
Sunday, October 25, 2009
A Rainy Weekend
Things are going well albeit wet in Seattle. Mom has been going to radiation for 3 days now, and taking her Chemo pills - which apparently cost over $8000! Thankfully, the cost to my parents was only two hundred, which seems reasonable. So far, Mom hasn't felt any side affects from either treatment - and we are all hoping that is going to be the norm but she's aware the radiation might give her small burns and hair loss in the point of entry. She has to lay underneath her mask, which she says is quite confining. I am planning on taking her on Wednesday to treatment, and the nurses say I can take a picture, so if it's not too disturbing, I will post it.
Friday, Bonnie and I went to Northgate mall. She wanted some new shoes, slip-ons that are comfortable since her anti-seizure medicine swells her ankles a bit. She found a cute pair - the first pair she tried on. Therefore, a very successful shopping trip. She used up the Macy's Gift Card she had received from a handful of Wedgwood teachers (Thanks all!) We also ate lunch at Panera Bread. She had to be home in time to get to radiation, so it was only a couple hour trip but overall, went really well.
Also this weekend, Mom picked up a blanket she started crocheting a few months ago. To everyone's surprise, she had no trouble remembering how to crochet - or how to follow the pattern she was using. She was shocked at how easy it was to pick up where she left off. I think she will probably get her crafting groove on since she has lots of free time!
Misha has been working crazy hard these past few weeks trying to get the kitchen up and running at a new bar in Fremont which opened this weekend. LTD (the bar name) is officially open and busy! Bryce and I went down today for lunch and the place was packed. Misha was pretty busy but still managed to serve us up some delicious appetizers. The mac n' cheese balls were so yummy! I told a few of you I would post the information here about it - so here it is. LTD, a sports bar, is located in Fremont. I don't have the exact address, but it is on 36th and Leary across the street from the 7-11. If you need an exact address, Nana's Soup House is on 225 N. 36th and is 2 doors away. I think he is only supposed to be scheduled until 4 pm each day -but apparently worked a 15 hour day yesterday! Mom and Dad are planning to visit next Sunday.
Friday, Bonnie and I went to Northgate mall. She wanted some new shoes, slip-ons that are comfortable since her anti-seizure medicine swells her ankles a bit. She found a cute pair - the first pair she tried on. Therefore, a very successful shopping trip. She used up the Macy's Gift Card she had received from a handful of Wedgwood teachers (Thanks all!) We also ate lunch at Panera Bread. She had to be home in time to get to radiation, so it was only a couple hour trip but overall, went really well.
Also this weekend, Mom picked up a blanket she started crocheting a few months ago. To everyone's surprise, she had no trouble remembering how to crochet - or how to follow the pattern she was using. She was shocked at how easy it was to pick up where she left off. I think she will probably get her crafting groove on since she has lots of free time!
Misha has been working crazy hard these past few weeks trying to get the kitchen up and running at a new bar in Fremont which opened this weekend. LTD (the bar name) is officially open and busy! Bryce and I went down today for lunch and the place was packed. Misha was pretty busy but still managed to serve us up some delicious appetizers. The mac n' cheese balls were so yummy! I told a few of you I would post the information here about it - so here it is. LTD, a sports bar, is located in Fremont. I don't have the exact address, but it is on 36th and Leary across the street from the 7-11. If you need an exact address, Nana's Soup House is on 225 N. 36th and is 2 doors away. I think he is only supposed to be scheduled until 4 pm each day -but apparently worked a 15 hour day yesterday! Mom and Dad are planning to visit next Sunday.
Wednesday, October 21, 2009
Surprise for Bonnie!
Yesterday, Mom had her last Occupational Therapy home appointment. Her therapist, Jane, has decided there isn't much else she can do for Mom. She's already shown her the right way to get in/out of the shower, use the walker, and gave her some silly putty for hand exercises. But, since Mom is progressing so well - there nothing left for Jane to teach her. Yeah Bonnie!
Today, Mom and I spent the morning watching Boston Legal and The People's Court. Sasha stopped by with KFC (which Mom loves!) for lunch. We hung out until she had to leave for another Oncology appointment. She went into the radiology room at Group Health and got all set-up for what she thought was a trial-run. She asked the nurse and she said, 'No, we don't do trials - that was your first treatment.' So...as of today, Bonnie has started radiation. A bit of shock to us all, but it's maybe better this way. Mom said it didn't hurt at all - just the mask is a bit confining. And now, Mom doesn't have to worry about it all weekend.
She also is starting her Chemo pills tonight. She has 6 weeks of pills and 30 radiation treatments. Looks like she will be doing all of this up till the first week of December. The doctor says she shouldn't feel too sick from all this, so we will just start keeping tabs on her pain/comfort levels. There is a possibility the combination of surgery, chemo and radiation may change her likes and dislikes, so I will keep everyone posted if it's a change worth knowing about!
**FYI: Bonnie's radiation appointments are M-F at 3:30 pm. She will be gone everyday 3 - 5 pm, so if you are dropping by to bring food or to talk - please take note of these times!! **
Today, Mom and I spent the morning watching Boston Legal and The People's Court. Sasha stopped by with KFC (which Mom loves!) for lunch. We hung out until she had to leave for another Oncology appointment. She went into the radiology room at Group Health and got all set-up for what she thought was a trial-run. She asked the nurse and she said, 'No, we don't do trials - that was your first treatment.' So...as of today, Bonnie has started radiation. A bit of shock to us all, but it's maybe better this way. Mom said it didn't hurt at all - just the mask is a bit confining. And now, Mom doesn't have to worry about it all weekend.
She also is starting her Chemo pills tonight. She has 6 weeks of pills and 30 radiation treatments. Looks like she will be doing all of this up till the first week of December. The doctor says she shouldn't feel too sick from all this, so we will just start keeping tabs on her pain/comfort levels. There is a possibility the combination of surgery, chemo and radiation may change her likes and dislikes, so I will keep everyone posted if it's a change worth knowing about!
**FYI: Bonnie's radiation appointments are M-F at 3:30 pm. She will be gone everyday 3 - 5 pm, so if you are dropping by to bring food or to talk - please take note of these times!! **
Tuesday, October 20, 2009
Monday's Visit to Oncology
Oncology visit today. I met another amazing GH Doctor who lives just down the street from us. He did say I would be having radiation and the pill form of chemo simultaneously for approximately 6 weeks. He doesn't expect me to lose my hair but the chemo may make me sick at first. They may need to change my pill dosage once we see how I tolerate it. He doesn't anticipate I'll have too many problems. I start my treatment next Monday, 10/26.
I can't say enough about the care I've been receiving at Group Health. For all you folks who still refer to GH as Group Death, just know we are in good hands.
-Bonnie
******
Things have been trucking along normally with us. Peter's body is aching, Misha started working 55+ hour work weeks to get a new sports bar open very soon, I am splitting my time between the parent's home and my own - trying to fit homework in. Sasha is always busy at work, as is Kei - and with a doggy brood of 3 - they have their hands full. And Mom, she just goes with everyone else's flow - doesn't really get much of a say about her day with all the appointments and therapy visits, but I don't think she minds too much yet. I am sure one day soon, the very seldom seen Exasperated Bonnie will come through and she will have some words (probably with Dad -ha!)
Mom says they are going to push back her mammogram. With radiation being 5 days a week for 6 weeks - who really wants one more hospital trip? Honestly.
Here is one of the cards we have made previously. I haven't photographed the new ones from Sunday - but you can get the idea!
Sunday, October 18, 2009
'Area of expertise'
Hello all! Sorry posts are becoming more sporadic - Bonnie's recovery is going so well; there is not much to post. But, I have a few notes. Mom visited her surgeon on Thursday. He thinks Mom will just have radiation and no chemo. She has an appointment with the Oncologist on Monday, so I am sure we will hear a more definite course of action. Sometimes it's hard hearing so many suggestions from all the different nurses and doctors - but I know they are just giving their best educated suggestions. They are all there to help so we will just wait and see what the final plan will be. Mom has a funny story about the surgeon which she told a few times this weekend. She mentioned to Dr. Wang that she is scheduled for a mammogram in a few weeks. Without missing a beat, he says to her, 'well, that's not really my area of expertise.' Mom got a chuckle outta that! She did tell him she only was mentioning it in case it would interfere with her radiation - which he doesn't think will be a problem. :)
On Sunday, Mom and I are going to a card party!!! For those of you who don't know what that is, they are in theory like a Tupperware party but way more hands on. We go to our amazing Card Lady's house, where she has designed and set up materials for us to make projects. We stamp and color and emboss and punch all kinds of papers to make 5 greeting cards - along the lines of scrapbooking, but way easier. We have been going to them for 4 years maybe...and we love them! We had to miss September's party due to Mom living at Virgina Mason that week - so I am super excited she's able to go! Ooh, I will post one of the cards we make - well, I will try!
Thursday, October 15, 2009
Bonnie's Thoughts
Wednesday:
Another busy Group Health day. At 10:30, a social worker stopped by to help get me started on my VEBA Account, disability insurance and provided me with a good source of information. Then at 1pm a physical therapist came to show me more exercises and was not happy to hear I was moving around the house with out my walker, so I had to promise to always use my walker or a cane. She was worried I might lose my balance and take a fall. She made me do laps with my walker around the main floor - i did 5 laps in 5 minutes. She was impressed with that. Then we did some sitting down exercises to build up my arms and back. Then she left and I had a few minutes to rest before my former "BRYANT Buds" stopped by, Kathy Lee and Mr. Terry Acena. That was entertaining and enjoyable. I had my first "zip"( as grandma would say) of red wine which immediately made me sleepy, I took a short nap, while waiting for my very good corned beef sandwich, courtesy of Misha.
Thursday:
I'm waiting for a speech language path to make a home visit, probably today. It's nice therapists make home visits, but I never know what to expect. Today, I also have a CT scan scheduled for 4:30 at central. So I expect the SLP to call just because I have some free time. Not so much for actual speech help they also work on keeping me focused.
Once again, I can't thank each and everyone of you enough for your continued support. It really makes a difference. I'm feeling better all the time but typing still tuckers me out. So I'll say goodbye for now.
Another busy Group Health day. At 10:30, a social worker stopped by to help get me started on my VEBA Account, disability insurance and provided me with a good source of information. Then at 1pm a physical therapist came to show me more exercises and was not happy to hear I was moving around the house with out my walker, so I had to promise to always use my walker or a cane. She was worried I might lose my balance and take a fall. She made me do laps with my walker around the main floor - i did 5 laps in 5 minutes. She was impressed with that. Then we did some sitting down exercises to build up my arms and back. Then she left and I had a few minutes to rest before my former "BRYANT Buds" stopped by, Kathy Lee and Mr. Terry Acena. That was entertaining and enjoyable. I had my first "zip"( as grandma would say) of red wine which immediately made me sleepy, I took a short nap, while waiting for my very good corned beef sandwich, courtesy of Misha.
Thursday:
I'm waiting for a speech language path to make a home visit, probably today. It's nice therapists make home visits, but I never know what to expect. Today, I also have a CT scan scheduled for 4:30 at central. So I expect the SLP to call just because I have some free time. Not so much for actual speech help they also work on keeping me focused.
Once again, I can't thank each and everyone of you enough for your continued support. It really makes a difference. I'm feeling better all the time but typing still tuckers me out. So I'll say goodbye for now.
Monday, October 12, 2009
Happy Birthday Bonnie!
Sorry for the long break. I had a friend visiting from Denver so I have been crazy busy and with today being Bonnie's Birthday - lots of things have been happening!
Mom has been busy this weekend with many visitors. I couldn't name them all if I tried. But cards keep pouring in - and with the birthday - even more! We have covered our fireplace with notes of well wishes! Everything from homemade stamped cards and silly comics sent to make Bonnie laugh to Hallmark-esque sentiments.
We took a short visit to the Duchess Tavern on Friday afternoon to hang out with many family and friends. Afterwards, back to Mom's for Maria's enchiladas which were delicious! My Dad wants the recipe! Saturday was a special visit to the University Village to get pedicures!!! Mom, Megan (my visitor) and I all got soaked and scrubbed and had a very nice time. Parking at the U.Village with a 'Handicapped' parking pass on a Husky Saturday was quite possibly my highlight!
Monday was a big day too! Pete, Bonnie, Grandma, Bill and I all went up to Angel of the Winds Casino - North of Seattle about an hour. We played some penny slots and had a very nice lunch. My Mom really wanted a patty melt - which wasn't on the menu - but we asked and they made one just for her! Overall, I think we as a group lost money - but some of us *cough* walked away with an extra $40!
If I have not mentioned it before, thanks everyone - your support is really making this situation a happier one. We get to see friends from years past and far away. We get to eat amazing food - I think Peter is quickly learning to appreciate the food deliveries! My Mom is not really one for being mushy - but it means a great deal to all of us to see how much you care.
From all of us - thank you.
Mom has been busy this weekend with many visitors. I couldn't name them all if I tried. But cards keep pouring in - and with the birthday - even more! We have covered our fireplace with notes of well wishes! Everything from homemade stamped cards and silly comics sent to make Bonnie laugh to Hallmark-esque sentiments.
We took a short visit to the Duchess Tavern on Friday afternoon to hang out with many family and friends. Afterwards, back to Mom's for Maria's enchiladas which were delicious! My Dad wants the recipe! Saturday was a special visit to the University Village to get pedicures!!! Mom, Megan (my visitor) and I all got soaked and scrubbed and had a very nice time. Parking at the U.Village with a 'Handicapped' parking pass on a Husky Saturday was quite possibly my highlight!
Monday was a big day too! Pete, Bonnie, Grandma, Bill and I all went up to Angel of the Winds Casino - North of Seattle about an hour. We played some penny slots and had a very nice lunch. My Mom really wanted a patty melt - which wasn't on the menu - but we asked and they made one just for her! Overall, I think we as a group lost money - but some of us *cough* walked away with an extra $40!
If I have not mentioned it before, thanks everyone - your support is really making this situation a happier one. We get to see friends from years past and far away. We get to eat amazing food - I think Peter is quickly learning to appreciate the food deliveries! My Mom is not really one for being mushy - but it means a great deal to all of us to see how much you care.
From all of us - thank you.
Friday, October 9, 2009
Bonnie's Comment
Hello all - Bonnie made a surprise comment on the blog which I just noticed tonight - so I am reposting here for everyone to see. When I helped her type at Virginia Mason - it was a bit of a struggle for her to form sentences, so seeing her post makes me happy! I can't agree with her more about the support she is getting from her amazing friends. Thank you all for helping make this journey a positive one!
*****
Hi Everyone -- I'm feeling stronger every day and pretty much can get around the house without my walker. Thanks for all for your cards, comments, great food, flowers and well wishes. With all your words of love and support, I feel the healing powers coming through. I'm having a little trouble having bm's but my stool softener is being increased so hopefully, that will help. Probably info you may not wanted to know. I'm also having trouble typing but that's part of my PT to help coordinate with the left side of my brain.Thanks again, hope to see you all real soon.bonnie
*****
Mom, Bryce says that was basically 'too much information' :) Love you!
*****
Hi Everyone -- I'm feeling stronger every day and pretty much can get around the house without my walker. Thanks for all for your cards, comments, great food, flowers and well wishes. With all your words of love and support, I feel the healing powers coming through. I'm having a little trouble having bm's but my stool softener is being increased so hopefully, that will help. Probably info you may not wanted to know. I'm also having trouble typing but that's part of my PT to help coordinate with the left side of my brain.Thanks again, hope to see you all real soon.bonnie
*****
Mom, Bryce says that was basically 'too much information' :) Love you!
Monday, October 5, 2009
A Trip to Radiology
Peter, Bonnie and I went to Group Health Radiology today. Today's visit was scheduled to make a mold of her face. They placed a tight layer of mesh fabric over her face and added some markers. This way when she comes in for her radiation treatments, they will line her face in the mold, and use the markers to tell the lasers where to shoot. Sounds very high tech.
The brain tumor has been diagnosed as a Glioblastoma Multiforme. Some websites (specifically the medical sites) have very serious - almost grim - tone while talking about this type of tumor. They really aren't very uplifting, so I recommend staying away from them and the Wikipedia article - but a way better website with more practical information is http://brain.mgh.harvard.edu/PatientGuide.htm. This one is a Patient's guide to what is going on and what is to be expected in the future.
Currently the plan is the the targeted radiation and also a chemotherapy pill called Temodar. The new start date for radiation isn't until October 26th. Since she will have to go everyday for up to 6 weeks, we have to be sure she can get in/out of the house. Today was the first day Mom used the stairs since coming home. I heard it took almost a half hour to get her up the stairs her first day home, but today only took about 5 minutes. Improvements everyday!
The brain tumor has been diagnosed as a Glioblastoma Multiforme. Some websites (specifically the medical sites) have very serious - almost grim - tone while talking about this type of tumor. They really aren't very uplifting, so I recommend staying away from them and the Wikipedia article - but a way better website with more practical information is http://brain.mgh.harvard.edu/PatientGuide.htm. This one is a Patient's guide to what is going on and what is to be expected in the future.
Currently the plan is the the targeted radiation and also a chemotherapy pill called Temodar. The new start date for radiation isn't until October 26th. Since she will have to go everyday for up to 6 weeks, we have to be sure she can get in/out of the house. Today was the first day Mom used the stairs since coming home. I heard it took almost a half hour to get her up the stairs her first day home, but today only took about 5 minutes. Improvements everyday!
Sunday, October 4, 2009
Weekend Update
Things have been going well in the Melnik household. Some highlights from this weekend:
*Joyce brought yummy soup and pie!
*Visitor count Friday and Saturday = 11
*Homemade play-doh
*Bonnie standing up and moving without her walker to go lock the kitchen door (it's a good sign although a bit worrisome!)
*An almost win for those Huskies
*Delicious cinnamon bread
*Phone calls, emails, cards and flowers!
*A special visit from Sasha and Kei and their 3 little doggies, all shih tzus - 2 are puppies! (that was excitement for everyone especially Emmadog!)
This weekend has been really good for Bonnie. She's been moving a lot on her own, making jokes, petting Emma, watching football, chatting with friends and eating treats! She was very moved by the Food Calender getting so full so quick and is very excited to try out every one's recipes.
**I will make some additions to the food calender in just a bit. If you want to sign up for a delivery day, here is how to do it.
Go to Google, type in Calendar and use the first link or just go to www.google.com/calendar
For the user name: Melnikdinners
For the password: emma2222
Double click on any 'insert food here' and edit the post, adding your name.
** Hopefully that helps people. Contact me with questions!
*Joyce brought yummy soup and pie!
*Visitor count Friday and Saturday = 11
*Homemade play-doh
*Bonnie standing up and moving without her walker to go lock the kitchen door (it's a good sign although a bit worrisome!)
*An almost win for those Huskies
*Delicious cinnamon bread
*Phone calls, emails, cards and flowers!
*A special visit from Sasha and Kei and their 3 little doggies, all shih tzus - 2 are puppies! (that was excitement for everyone especially Emmadog!)
This weekend has been really good for Bonnie. She's been moving a lot on her own, making jokes, petting Emma, watching football, chatting with friends and eating treats! She was very moved by the Food Calender getting so full so quick and is very excited to try out every one's recipes.
**I will make some additions to the food calender in just a bit. If you want to sign up for a delivery day, here is how to do it.
Go to Google, type in Calendar and use the first link or just go to www.google.com/calendar
For the user name: Melnikdinners
For the password: emma2222
Double click on any 'insert food here' and edit the post, adding your name.
** Hopefully that helps people. Contact me with questions!
Thursday, October 1, 2009
A Food Calendar
Hey all, here is the scoop! Amy Breiger, a former Wedgwood mom and a friend of Bonnie's, has set up a food calendar through Google! It is actually posted below at the bottom of the blog page now.
As you can see, Joyce signed up to bring food this Friday! I am hoping to have food deliveries on the same days each week (Monday and Thursday) to help my Dad plan. Varying days will throw him off! :) But, if you have something special you want to bring on another day - just add it to the calendar, and I will let Peter know. *As of right now, I am not sure the best way to write on the calendar. I am going to talk to Joyce about the way she did it - and I will post directions tomorrow!*
We talked as a family, and basically if soups can be kept to about a quart (4 cups) and casserole-type things in a normal 12x9 size pan - then we should be able to eat it all and not waste any food. But, again we really appreciate all gifts and don't want to sound like we are being picky. As for the type of food - Bonnie does not like seafood, anything spicy, coconut and curry. But she is a fan of soups, salads (pasta, green, potato, etc...), BBQ, fried chicken, anything italian, casseroles - overall she's not nearly as picky as me!
I didn't see her for too long today since I had class. She was in good spirits for the time I was there, and now she has blue fingernails! Tomorrow, I think we are going to crochet some ghosts.
***A very special THANKS to Amy Breiger for setting up the calendar and providing me with the directions and to Joyce for constantly being our contact to the rest of the world!!***
As you can see, Joyce signed up to bring food this Friday! I am hoping to have food deliveries on the same days each week (Monday and Thursday) to help my Dad plan. Varying days will throw him off! :) But, if you have something special you want to bring on another day - just add it to the calendar, and I will let Peter know. *As of right now, I am not sure the best way to write on the calendar. I am going to talk to Joyce about the way she did it - and I will post directions tomorrow!*
We talked as a family, and basically if soups can be kept to about a quart (4 cups) and casserole-type things in a normal 12x9 size pan - then we should be able to eat it all and not waste any food. But, again we really appreciate all gifts and don't want to sound like we are being picky. As for the type of food - Bonnie does not like seafood, anything spicy, coconut and curry. But she is a fan of soups, salads (pasta, green, potato, etc...), BBQ, fried chicken, anything italian, casseroles - overall she's not nearly as picky as me!
I didn't see her for too long today since I had class. She was in good spirits for the time I was there, and now she has blue fingernails! Tomorrow, I think we are going to crochet some ghosts.
***A very special THANKS to Amy Breiger for setting up the calendar and providing me with the directions and to Joyce for constantly being our contact to the rest of the world!!***
Welcome Home
Bonnie did not have radiation today. The discharge doctors decided she's not quite strong enough, so we are not sure when treatment is going to start. She has follow-up visits with her doctor, the surgeon and an oncologist in the next 3 weeks - so I think it will be up to them to decide.
Bonnie had a pretty good day overall. I heard getting up the stairs to the house was quite tricky, but after that - there wasn't much trouble. Misha, Mom and I watched Court TV - ate enchiladas and read some blog comments. Mom also had a special bowl of soup from Mr. Spice. She knew right away it was the Italian Soup recipe she makes alot, but at first thought it was from Joyce. But when I told her there was okra in it - she knew it was from Clarence (and was delicious)!
She is ready for visitors - any time of the day is okay for now. We aren't sure when therapy at home will start, but I will post generic times here to help people plan. I am working on a meal schedule/planner - but am having a very hard time finding an easy way to organize and post it...if anyone has ideas - I could use some! I will post some food suggestions tomorrow, but I am exhausted and need sleep!
Bonnie had a pretty good day overall. I heard getting up the stairs to the house was quite tricky, but after that - there wasn't much trouble. Misha, Mom and I watched Court TV - ate enchiladas and read some blog comments. Mom also had a special bowl of soup from Mr. Spice. She knew right away it was the Italian Soup recipe she makes alot, but at first thought it was from Joyce. But when I told her there was okra in it - she knew it was from Clarence (and was delicious)!
She is ready for visitors - any time of the day is okay for now. We aren't sure when therapy at home will start, but I will post generic times here to help people plan. I am working on a meal schedule/planner - but am having a very hard time finding an easy way to organize and post it...if anyone has ideas - I could use some! I will post some food suggestions tomorrow, but I am exhausted and need sleep!
Tuesday, September 29, 2009
One last night..
Bonnie's final night at Virginia Mason! I think a combination of 16 days in the hospital and no sleep last night made for a very tired Bonnie. Dad commented she was sleepy all day, and when I showed up she was already passed out. I cleaned up some of her belongings to make tomorrows transition faster, and left her a note and some Wedgwood grown veggies! She woke up briefly and smiled at me, but I am not sure she is even going to remember I was there.
I visited Wedgwood School today. It was definitely hard being there, but everyone is so caring and supportive. Bonnie has a list of people waiting till she gets settled back at home, and then the visitors will come pouring in. I am going to try to set up a calendar on this blog to help organize food deliveries. Jim Spoor mentioned how much they appreciated the dinner deliveries and the relief it brought when they went through a medical mess. So, even though Peter is probably going to complain, I think it's a good thing all around. Mom is also going to need various stimulation activities to keep her mind busy - so if anyone has a craft project or skill they want to teach or be taught, card games to play, puzzles to solve - I think we will try to fit those all in. Gotta keep her brain sharp.
Peter has been working very hard to get the house ready. New hand rails have been put in place all over. He set up a bed on the main floor (no stairs yet for mom) and rearranged some furniture to make more traveling room. I think Mom will be impressed with the changes. I am sure Dad is anxious to have Mom back, and for them to get a routine down.
***
If anyone is having trouble posting, I will try to explain the easiest way to do it. Start by clicking the 'Comment' link at the bottom of any entry and write in the 'Post a Comment' section. Where it says 'Comment as...' with a drop down box - choose 'Anonymous'. Type the word for the 'Word Verification' and it should appear! But, be sure to put your name somewhere in the comment so we know who is writing! Let me know if you are still having problems, I can give more help if needed!
I visited Wedgwood School today. It was definitely hard being there, but everyone is so caring and supportive. Bonnie has a list of people waiting till she gets settled back at home, and then the visitors will come pouring in. I am going to try to set up a calendar on this blog to help organize food deliveries. Jim Spoor mentioned how much they appreciated the dinner deliveries and the relief it brought when they went through a medical mess. So, even though Peter is probably going to complain, I think it's a good thing all around. Mom is also going to need various stimulation activities to keep her mind busy - so if anyone has a craft project or skill they want to teach or be taught, card games to play, puzzles to solve - I think we will try to fit those all in. Gotta keep her brain sharp.
Peter has been working very hard to get the house ready. New hand rails have been put in place all over. He set up a bed on the main floor (no stairs yet for mom) and rearranged some furniture to make more traveling room. I think Mom will be impressed with the changes. I am sure Dad is anxious to have Mom back, and for them to get a routine down.
***
If anyone is having trouble posting, I will try to explain the easiest way to do it. Start by clicking the 'Comment' link at the bottom of any entry and write in the 'Post a Comment' section. Where it says 'Comment as...' with a drop down box - choose 'Anonymous'. Type the word for the 'Word Verification' and it should appear! But, be sure to put your name somewhere in the comment so we know who is writing! Let me know if you are still having problems, I can give more help if needed!
Monday, September 28, 2009
MRI updates!
Bonnie had an MRI this afternoon to check on the progress of that nasty tumor! According to today's pictures - all news is good news.
There is no new tumor growth - which is probably the best news we have gotten in a long time. Whatever was left of the tumor, which is still there - will be attacked with radiation starting Wednesday. There was no swelling or bleeding either! Yea!
Dr. Weinstein (not the wiseass) has been assigned to mom. She likes him. There are quite a few Floor 9 staff that mom likes also, so we were just discussing doing something nice for them after she gets home. They have taken pretty good care of her and have tolerated all of us for the past 2 weeks.
On a side note, I apologize if I have not gotten back to my personal emails. Like phone calls - I am terrible at returning messages, but I am planning on tackling them soon! Thanks again to everyone for all the well-wishes!
There is no new tumor growth - which is probably the best news we have gotten in a long time. Whatever was left of the tumor, which is still there - will be attacked with radiation starting Wednesday. There was no swelling or bleeding either! Yea!
Dr. Weinstein (not the wiseass) has been assigned to mom. She likes him. There are quite a few Floor 9 staff that mom likes also, so we were just discussing doing something nice for them after she gets home. They have taken pretty good care of her and have tolerated all of us for the past 2 weeks.
On a side note, I apologize if I have not gotten back to my personal emails. Like phone calls - I am terrible at returning messages, but I am planning on tackling them soon! Thanks again to everyone for all the well-wishes!
Sunday, September 27, 2009
Weekend Updates
Bryce and I stopped by Saturday evening with a burrito and a cribbage board. Bryce played against Mom and I - he won - boo! Bonnie played well - has a little trouble moving the pegs and shuffling. Her math skills seem right on point, which was good to see. Hopefully she doesn't think I am patronizing her when I make her explain her calculations but I think she knows I am just checking to see how well her brain is functioning.
I came by today also. Evidently she had tons of visitors. Jim and Kathy came during group therapy - so they joined in! Peter came for 2 therapy sessions and will go to one tomorrow. At least 4 other people stopped by with treats and stories. I could tell she was worn out by the time I got there. She wanted to stay awake to watch Desperate Housewives but I left an hour before it started and she was already in bed with droopy eyes. Mom had a session with Molly the dog, yesterday, which she enjoyed! I think she misses Emma Dog and I know Emma misses her. Dad is rearranging the furniture so Emma will have a bed right by Bonnie when she gets home. It will be nice to get Mom home so we can get our new routines down. Wednesday will be a big day!
I came by today also. Evidently she had tons of visitors. Jim and Kathy came during group therapy - so they joined in! Peter came for 2 therapy sessions and will go to one tomorrow. At least 4 other people stopped by with treats and stories. I could tell she was worn out by the time I got there. She wanted to stay awake to watch Desperate Housewives but I left an hour before it started and she was already in bed with droopy eyes. Mom had a session with Molly the dog, yesterday, which she enjoyed! I think she misses Emma Dog and I know Emma misses her. Dad is rearranging the furniture so Emma will have a bed right by Bonnie when she gets home. It will be nice to get Mom home so we can get our new routines down. Wednesday will be a big day!
Saturday, September 26, 2009
Friday night recap...
Hello all, here is the continuation of Friday night's post. I visited Mom in the early evening with Dick's cheeseburgers and fries at her request. We had dinner and talked about her day. She mentioned during therapy she got to use one of the computers and that she was allowed to use it but couldn't get there by herself, so I knew that was my cue to take her.
I asked her if we needed to get a nurse to help her up, but she said the two of us could do it together. She talked me through her steps, making sure her walker was in the right spot, the wheelchair was locked, etc. She got up with no problem and no help from me. Within a minute or two we were cruising down the hallway. We had to walk past the nurses station before getting to the room, and that's when her nurse, Larry - stops us and asks if I had been cleared to walk with my mom! Busted!! Ah well. He walked with us the rest of the way.
We checked the blag and she read the comments. She posted her entry, but I could see she was struggling with things to say and was having a little bit of a hard time typing. I think her long fingernails weren't helping much. She really didn't know what to say, hence the short entry, but any type of 'thinking' activity is going to help her regain her brain skills. Next she played a game of Spider Solitaire. Overall, she understood the concept and how to play - but I think the part of her brain which is for thinking a few steps ahead needs some retraining. She could always find her next move, but couldn't really see how moving one card now could be beneficial in a turn or two. But with some slight prompting, she finished the game - but I could see it had worn her out a bit.
Since she is coming home so soon - Dad will start going to her therapy sessions to learn new ways of helping her. I think I will try to visit some also. It's nice to see the way they do things, because they try to keep things consistent to help her remember the right way to do things. For instance, every time she stands up now - she counts to 3. These verbal cues help all of her know what is going on - so it's kind of silly to watch - but they are working - so I am all down with it.
I am heading off to visit her now, looking forward to seeing how her day is going.
I asked her if we needed to get a nurse to help her up, but she said the two of us could do it together. She talked me through her steps, making sure her walker was in the right spot, the wheelchair was locked, etc. She got up with no problem and no help from me. Within a minute or two we were cruising down the hallway. We had to walk past the nurses station before getting to the room, and that's when her nurse, Larry - stops us and asks if I had been cleared to walk with my mom! Busted!! Ah well. He walked with us the rest of the way.
We checked the blag and she read the comments. She posted her entry, but I could see she was struggling with things to say and was having a little bit of a hard time typing. I think her long fingernails weren't helping much. She really didn't know what to say, hence the short entry, but any type of 'thinking' activity is going to help her regain her brain skills. Next she played a game of Spider Solitaire. Overall, she understood the concept and how to play - but I think the part of her brain which is for thinking a few steps ahead needs some retraining. She could always find her next move, but couldn't really see how moving one card now could be beneficial in a turn or two. But with some slight prompting, she finished the game - but I could see it had worn her out a bit.
Since she is coming home so soon - Dad will start going to her therapy sessions to learn new ways of helping her. I think I will try to visit some also. It's nice to see the way they do things, because they try to keep things consistent to help her remember the right way to do things. For instance, every time she stands up now - she counts to 3. These verbal cues help all of her know what is going on - so it's kind of silly to watch - but they are working - so I am all down with it.
I am heading off to visit her now, looking forward to seeing how her day is going.
Friday, September 25, 2009
Bonnie's First Post
5 more days and counting. Thanks to all of you for the nice comments. And especially to Paul for making such a valiant effort. Jenya says my hair appears to be growing in gray now.
***
Bonnie and I are sitting in the conference room at VM using their computer. She is walking quickly, with 'long steps'. She is well on her way to being strong enough to come home on Wednesday which was a slight concern last week. If you haven't seen her in a few days, the improvement is amazing! I will post more later tonight. Right now I can tell she wants to play some video games!
***
Bonnie and I are sitting in the conference room at VM using their computer. She is walking quickly, with 'long steps'. She is well on her way to being strong enough to come home on Wednesday which was a slight concern last week. If you haven't seen her in a few days, the improvement is amazing! I will post more later tonight. Right now I can tell she wants to play some video games!
Thursday, September 24, 2009
Wednesday Night
Today was a fairly normal day for Bonnie. I showed up a bit after 7 pm and was greeted by Jim Spoor who was there visiting. Linda Spoor visited earlier today as did Lyle and Carolyn Rathe. Other than that, it didn't seem like anything new happened today.
Mom was already in bed when I showed up, which I thought was pretty early, but she said was feeling tired from her therapy. We hung out with Jim, and talked school. After Jim left, we watched some Dancing with the Stars. I told her I needed something exciting to write about, since nothing really changed today. She mentioned that I can let everyone know they are invited to visit her. She has various therapy sessions 2 -4 times a day - but is almost always done by 3pm. So if anyone would like to visit, she would like to see ya.
Other than that - she's complaining about the hospital food - but when I asked her what else she wanted, she just gave me that 'meh' look. Ah well. She'll be home soon!
Mom was already in bed when I showed up, which I thought was pretty early, but she said was feeling tired from her therapy. We hung out with Jim, and talked school. After Jim left, we watched some Dancing with the Stars. I told her I needed something exciting to write about, since nothing really changed today. She mentioned that I can let everyone know they are invited to visit her. She has various therapy sessions 2 -4 times a day - but is almost always done by 3pm. So if anyone would like to visit, she would like to see ya.
Other than that - she's complaining about the hospital food - but when I asked her what else she wanted, she just gave me that 'meh' look. Ah well. She'll be home soon!
Wednesday, September 23, 2009
Today was a good day...
Tuesday brought a few changes and advances for Bonnie. After a test, it was noticed she had very high levels of the anti-seizure medicine in her system. So, the doctors decided to stop the medication until it could be better controlled. Evidently, this over saturation of medicine was bogging down her system as today two separate people (Joyce and my Dad) called my mom 'perky.' As you all know, and even Bonnie commented that 'perky' is not a word normally used to describe her - so it was a good thing. She walked twice as far today compared to all previous exercise sessions and was in good spirits.
Also, one of the nurses removed all 25 of her staples tonight. She toughed through it complaining very little about the pain, only commenting that he pulled a few of her hairs. There was no bleeding or separation of the incision - so that turned out very well also. Her head is very much starting to itch with healing and hair growth, so the nurse warned her to be careful about scratching gently.
Mom also got to read the comments left on the 'blag'. I showed her the nice things you all had to say, which she very much enjoyed in between segments of Dancing with the Stars. I could see she is missing her computer time at home, and I didn't have a mouse on me (those laptop touch pads are tricky) but next time I will have it all ready for her to play some games and get that brain moving.
Thanks to everyone who is bringing in snacks/treats. She has been cleared to eat outside food, and her blood sugar has been very stable so she is allowed to have some sweets. I hear her friend *Rick is bringing her some cookies on Wednesday and Peter brought in some Fritos! I am sure that is more exciting than the turkey dinner she's had way too much this week.
Also, one of the nurses removed all 25 of her staples tonight. She toughed through it complaining very little about the pain, only commenting that he pulled a few of her hairs. There was no bleeding or separation of the incision - so that turned out very well also. Her head is very much starting to itch with healing and hair growth, so the nurse warned her to be careful about scratching gently.
Mom also got to read the comments left on the 'blag'. I showed her the nice things you all had to say, which she very much enjoyed in between segments of Dancing with the Stars. I could see she is missing her computer time at home, and I didn't have a mouse on me (those laptop touch pads are tricky) but next time I will have it all ready for her to play some games and get that brain moving.
Thanks to everyone who is bringing in snacks/treats. She has been cleared to eat outside food, and her blood sugar has been very stable so she is allowed to have some sweets. I hear her friend *Rick is bringing her some cookies on Wednesday and Peter brought in some Fritos! I am sure that is more exciting than the turkey dinner she's had way too much this week.
Monday, September 21, 2009
Monday's Visit
Peter, Misha and I just got back from the hospital. We got there just in time for her final physical therapy session, which turned out to be 'our' session. Sarah, the PT, and surprisingly, our neighbor... talked to us and showed us ways to help lift mom out of the wheelchair to a bed and back. We each took turns helping shift her and get her situated. I am sure we will all have a few more training sessions before she makes it home. On that note...
After talking with the Social worker, Mom's estimated discharge date is Sept 30. This is the same as radiation visit #1 - so that might get pushed back a bit. The release date is very much dependant on Bonnie's progress but it is still nice to have a time frame. We were also told that after Bonnie gets home - we will have various services coming to assist her and us. She will be getting occupational and physical therapy, speech and memory therapy, nurses to help regulate her blood sugar (the steroid she's on throws that outta whack) and other assistance depending on what is needed. Emma will have so many people to bark at - she will be exhausted!
Bonnie worked on a Sudoku today. It took a bit of prompting to get it all done, but with just a few reminders it she solved it and we moved on to a crossword puzzle. That was a bit trickier but with some practice she will be able to work on them by herself. I think it was a nice change for her to actually 'do' something, even if it was a bit of a struggle.
Thanks again for all of your support. We have been receiving so many cards and flowers. It is always nice to know we have friends who would be willing to do anything!
After talking with the Social worker, Mom's estimated discharge date is Sept 30. This is the same as radiation visit #1 - so that might get pushed back a bit. The release date is very much dependant on Bonnie's progress but it is still nice to have a time frame. We were also told that after Bonnie gets home - we will have various services coming to assist her and us. She will be getting occupational and physical therapy, speech and memory therapy, nurses to help regulate her blood sugar (the steroid she's on throws that outta whack) and other assistance depending on what is needed. Emma will have so many people to bark at - she will be exhausted!
Bonnie worked on a Sudoku today. It took a bit of prompting to get it all done, but with just a few reminders it she solved it and we moved on to a crossword puzzle. That was a bit trickier but with some practice she will be able to work on them by herself. I think it was a nice change for her to actually 'do' something, even if it was a bit of a struggle.
Thanks again for all of your support. We have been receiving so many cards and flowers. It is always nice to know we have friends who would be willing to do anything!
Sunday, September 20, 2009
What I know so far...
Thanks all for your comments! I am super excited for Mom to read all of these things and see such wonderful things you all have to say!
*****
For those of you who haven't heard - Bonnie has been diagnosed with a brain tumor.
Basically, since she retired, my Mom has been a little 'off.' She wasn't as quick as one would expect and was getting distracted easily. No one in the family was quite sure what was going on - but were we all watching and waiting to see if it would pass. Last week while getting some crackers, she fell (and sat on the floor eating crackers with Emma the dog) and combining that with a bladder problem - my dad's concern heightened.
So, on Thursday, Sept 10 - Bonnie visited a gynecologist. While talking about the problem, Mom was leaning a bit to the left and the doctor noticed and mentioned she thought all the problems were neurological or related to having small strokes. She was given a CT scan which showed a mass in her brain. She was transferred to Virginia Mason and given an MRI which showed the mass was a tumor and due to the aggressiveness nature of it - most likely cancerous.
She stayed overnight, but Friday was allowed to come home until surgery which was scheduled for Monday. Things were mostly normal over that weekend. She returned to VM on Monday - had the surgery which went well. The surgeon said they got a 'pretty good amount' of the tumor but not all. Since being located in the brain - aggressive removal of tumors can lead to loss of normal functions and no one wanted that.
Since the surgery, Mom has been playing musical floors at VM. She started in ICU - stayed there for 2 days - moved to the oncology floor for another day and now has settled in on the Rehab floor.
Her 'wiseass' doctor - an Irish redhead :) - explained to me a few nights ago that they were still testing the tumor to see which type of cells it was composed of and therefore the best way to treat the cancer. As far as I know, the plan is still going to be targeted radiation at her brain. Her first appointment is scheduled for the 30th of September, but maybe be postponed depending on her strength. We are not sure when she will be coming home, but it looks like a few more days for sure at the hospital.
Phew! I think that is most of the information I know. Again, thanks very much for all your well-wishes and support. She has been entertaining lots of visitors (Mr. Peterson came by today) and is cracking jokes and had real pizza today! (thanks Sasha!)
So, overall - things are okay. Everyone is keeping spirits up and keeping her entertained. She is our priority and we all very much appreciate the cards, phone calls, emails and the comments. We are very lucky to have such amazing friends. Thanks!
*****
For those of you who haven't heard - Bonnie has been diagnosed with a brain tumor.
Basically, since she retired, my Mom has been a little 'off.' She wasn't as quick as one would expect and was getting distracted easily. No one in the family was quite sure what was going on - but were we all watching and waiting to see if it would pass. Last week while getting some crackers, she fell (and sat on the floor eating crackers with Emma the dog) and combining that with a bladder problem - my dad's concern heightened.
So, on Thursday, Sept 10 - Bonnie visited a gynecologist. While talking about the problem, Mom was leaning a bit to the left and the doctor noticed and mentioned she thought all the problems were neurological or related to having small strokes. She was given a CT scan which showed a mass in her brain. She was transferred to Virginia Mason and given an MRI which showed the mass was a tumor and due to the aggressiveness nature of it - most likely cancerous.
She stayed overnight, but Friday was allowed to come home until surgery which was scheduled for Monday. Things were mostly normal over that weekend. She returned to VM on Monday - had the surgery which went well. The surgeon said they got a 'pretty good amount' of the tumor but not all. Since being located in the brain - aggressive removal of tumors can lead to loss of normal functions and no one wanted that.
Since the surgery, Mom has been playing musical floors at VM. She started in ICU - stayed there for 2 days - moved to the oncology floor for another day and now has settled in on the Rehab floor.
Her 'wiseass' doctor - an Irish redhead :) - explained to me a few nights ago that they were still testing the tumor to see which type of cells it was composed of and therefore the best way to treat the cancer. As far as I know, the plan is still going to be targeted radiation at her brain. Her first appointment is scheduled for the 30th of September, but maybe be postponed depending on her strength. We are not sure when she will be coming home, but it looks like a few more days for sure at the hospital.
Phew! I think that is most of the information I know. Again, thanks very much for all your well-wishes and support. She has been entertaining lots of visitors (Mr. Peterson came by today) and is cracking jokes and had real pizza today! (thanks Sasha!)
So, overall - things are okay. Everyone is keeping spirits up and keeping her entertained. She is our priority and we all very much appreciate the cards, phone calls, emails and the comments. We are very lucky to have such amazing friends. Thanks!
Sunday - Sept 20
Due to the overwhelming interest in how Bonnie is doing - I figured I would put all updates in one spot - that way everyone can see what is going on instead of waiting for emails from me.
As of today, the 20th, Mom is located at Virgina Mason on Capitol Hill on Seneca. She is on Rehab floor 9 in Room 18. She is getting physical therapy and occupational therapy usually 4 times a day.
Bonnie is enjoying visitors. She may look distracted while talking to you - but she's mostly listening. :) She will often play with things, but I think some of that is just boredom. She has mentioned being bored but her attention span is not quite there to do much else but watch tv.
I will be visiting her later today and will post an update when I get home.
As of today, the 20th, Mom is located at Virgina Mason on Capitol Hill on Seneca. She is on Rehab floor 9 in Room 18. She is getting physical therapy and occupational therapy usually 4 times a day.
Bonnie is enjoying visitors. She may look distracted while talking to you - but she's mostly listening. :) She will often play with things, but I think some of that is just boredom. She has mentioned being bored but her attention span is not quite there to do much else but watch tv.
I will be visiting her later today and will post an update when I get home.
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